Resource List and Contacts

Brain Injury Association of America at http://www.biausa.org

8201 Greensboro Drive, Suite 611
McLean, VA 22102
800-643-4444
Provides information and resources including information on local family support networks, coordinates resource network.

Disability Rights Education and Defense Fund, Inc. (DREDF) at http://www.dredf.org.

2212 Sixth Street
Berkeley, CA 94710
510-644-2555CAV/TTY
Provides access to legal issues and other advocacy assistance to persons with disabilities: information/referral

Emergency Medical Services for Children National Resource Center at http://www.ems-c.org.

111 Michigan Ave. NW
Washington, DC 20010
202-884-4927
Provides information and resource relative to prevention, acute care and rehabilitation of children.

Evaluating Managed Care Plans for Children with Special Health Needs: A Purchaser's Tool at http://www.ichp.ufl.edu/policy_program_affairs.asp

Family Voices at http://www.familyvoices.org

2340 Alamo SE, Suite 102
Albuquerque, New Mexico 87107
888-835-5669
Family network providing information, support and resources regarding health and advocacy for children with special health care needs.

Institute for Child Health Policy at http://www.ichp.edu

5700 SW 34th St., Suite 323
Gainesville, Florida 32608-5367
888-433-1851
Provides state by state information about health/services related to children with special health care needs; information related to health finance and social security issues are also available.

National Association of Protection and Advocacy Systems (NAPAS) at http://www.napas.org

900 2nd Street, NE, S-211
Washington, DC 20002
202-408-9514
Provides information and referrals to state protection and advocacy programs for individuals with disabilities.

National Early Childhood Technical Assistance Center at http://www.nectas.unc.edu.

500 NationsBank Plaza
137 East Franklin Street
Chapel Hill, NC 27514-3628
919-962-2001
Provides information and resources for each state on any intervention and pre-school programs for children with special health care needs.

National Information Center on Children and Youth with Disabilities at http://www.nichcy.org.

PO Box 1492
Washington, DC 20013-1492
800-695-0285
Clearinghouse on information and resources related to children with disabilities and state agency contact information.

Parent Advocacy Coalition for Educational Rights (PACER Center) at http://www.pacer.org.

8161 Normandale Blvd.
Minneapolis, MN 55437
952-838-2966
Information regarding state-by-state parent information training centers; provides resources on education and transition services identified in IDEIA.

Traumatic Brain Injury Program at http://www.mchb.hrsa.gov/programs/tbi.htm.

Health Resources and Services Administration
Maternal and Child Health Bureau
Parklawn Building, Room 18-05
5600 Fishers Lane, Rockville, MD 20857
Provides information on federally funded state brain injury grants. Provides links to collaborators websites.