Resource List and Contacts

Brain Injury Association of America at

8201 Greensboro Drive, Suite 611
McLean, VA 22102
Provides information and resources including information on local family support networks, coordinates resource network.

Disability Rights Education and Defense Fund, Inc. (DREDF) at

2212 Sixth Street
Berkeley, CA 94710
Provides access to legal issues and other advocacy assistance to persons with disabilities: information/referral

Emergency Medical Services for Children National Resource Center at

111 Michigan Ave. NW
Washington, DC 20010
Provides information and resource relative to prevention, acute care and rehabilitation of children.

Evaluating Managed Care Plans for Children with Special Health Needs: A Purchaser's Tool at

Family Voices at

2340 Alamo SE, Suite 102
Albuquerque, New Mexico 87107
Family network providing information, support and resources regarding health and advocacy for children with special health care needs.

Institute for Child Health Policy at

5700 SW 34th St., Suite 323
Gainesville, Florida 32608-5367
Provides state by state information about health/services related to children with special health care needs; information related to health finance and social security issues are also available.

National Association of Protection and Advocacy Systems (NAPAS) at

900 2nd Street, NE, S-211
Washington, DC 20002
Provides information and referrals to state protection and advocacy programs for individuals with disabilities.

National Early Childhood Technical Assistance Center at

500 NationsBank Plaza
137 East Franklin Street
Chapel Hill, NC 27514-3628
Provides information and resources for each state on any intervention and pre-school programs for children with special health care needs.

National Information Center on Children and Youth with Disabilities at

PO Box 1492
Washington, DC 20013-1492
Clearinghouse on information and resources related to children with disabilities and state agency contact information.

Parent Advocacy Coalition for Educational Rights (PACER Center) at

8161 Normandale Blvd.
Minneapolis, MN 55437
Information regarding state-by-state parent information training centers; provides resources on education and transition services identified in IDEIA.

Traumatic Brain Injury Program at

Health Resources and Services Administration
Maternal and Child Health Bureau
Parklawn Building, Room 18-05
5600 Fishers Lane, Rockville, MD 20857
Provides information on federally funded state brain injury grants. Provides links to collaborators websites.